AYA Choices Study
The AYA Choices study is being done to learn how Adolescents and Young Adults navigate choices in their health care. This study will interview:
- a small number of people aged 15 and up who are living with serious, chronic illnesses excluding cancer; and
- a small number of specialists or providers who have experience caring for this population and with pediatric palliative or hospice care.
Study overview
Research Topic
Aging, Chronic Illness, & Health Care Choices
Location
Online or at UCSF
Population
Patients, Specialists, and Providers
What is the purpose of this study?
The goal of this study is to identify how adolescents and young adults (AYAs) living with chronic, complex conditions take part in their health care coordination. Interviews with patients, providers, and specialists will explore personal experiences and values, challenges in coordinating care, strategies for success, and more.
Who can join?
Patients, you may be able to join if...
- You are 15 or older
- You are living with any serious, chronic illness besides cancer
- You make health care choices with at least one provider involved in pediatric palliative or hospice care
Patients, you can't join if...
- You have ever been diagnosed with cancer
Providers or specialists, you may be able to join if...
- You have training or experience making health care decisions in pediatric palliative or hospice care
- You have any experience with this patient population
Providers or specialists, you can't join if...
- You do not have training or experience caring for this patient population
Frequently asked questions
Want more information?
Click below, or you can reach the study team by emailing [email protected]